Shriners Hospitals for Children and Oregon Health & Science University to Host ...
Port Washington, NY (PRWEB) June 22, 2011
Shriners Hospitals for Children and Oregon Health & Science University are co-hosting the 27th Annual National Marfan Foundation (NMF) Conference on July 14-17, 2011. The NMF Annual Conference enables people with Marfan syndrome and related connective tissue disorders, and their families, to meet leading Marfan syndrome researchers and physicians and learn about new medical and genetic research firsthand. At the Conference, the NMF will celebrate 30 years since its inception.
On July 16, at the NMF awards luncheon to be held at the Portland Marriott Downtown Waterfront, Shriners Hospitals for Children will receive the Foundation’s prestigious Scientific Leadership Award. Shriners is being recognized for its patient care and research accomplishments and for its ongoing commitment to the basic science that will lead to a better life for people with Marfan syndrome and related disorders in the future.
Lynn Sakai, PhD , Senior Investigator, Portland Shriners Research Center, and Professor of Biochemistry & Molecular Biology, Oregon Health & Science University, is spearheading the conference initiative. A member of the NMF’s Professional Advisory Board since 1997, Dr. Sakai is a leading Marfan syndrome researcher whose work laid the foundation for the identification of fibrillin, the culprit in Marfan syndrome, and led to advanced work that pointed to the candidate gene for Marfan syndrome.
More than 400 individuals, primarily affected people and their families, are expected to attend the conference to learn about Marfan syndrome and related disorders and network with other people with these conditions.
“The NMF is looking forward to a very successful conference this year in Portland, where so much of the seminal research for the understanding of Marfan syndrome has been conducted,” said NMF President and CEO Carolyn Levering. “We are happy to bring our conference back to the Pacific Northwest so our members in this part of the country can participate more easily. I’m sure they will find it is a life-changing experience.”
NMF Conference has Family Focus
The NMF Annual Conference begins with evaluation days on July 14-15 when people who have a diagnosis or suspect that they have Marfan syndrome or a related connective tissue disorder can be evaluated by medical experts from all over the country (by appointment only). The “health fair” offers people who do not have access to medical experts at home an opportunity to be evaluated by knowledgeable doctors from the host institutions and other leading Marfan syndrome clinics around the country. Echocardiography and eye exams will be conducted by OHSU physicians and staff on July 14, and orthopedic and genetic evaluations will be conducted at Shriners Hospitals for Children on July 15.
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Shriners Hospitals for Children and Oregon Health & Science University are co-hosting the 27th Annual National Marfan Foundation(NMF) Conference on July 14-17, 2011. The NMF Annual Conference enables people with Marfan syndrome and related connective
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